Having seen my oncologist yesterday there is both good and bad news. Having said that the good news is very good, and the bad news isn't that bad.
The Good News: There's nothing to worry about following my latest 'relapse.' The doctor's happy the seizure was the result of not being on enough drugs and coming off the steroids too soon. Either I had mild infection causing more swelling and/or the radiotherapy was still doing its stuff. If I have another seizure, say in a couple of months time, then I can start worrying. Now it's all about getting the anti-fitting medication right. My bloods were taken yesterday and will be tested for levels of Tegratol. Based on those levels the dosage will be adjusted accordingly. Then I can start coming off the steroids. Again.
The Bad News: I won't be getting behind the wheel of car this side of summer 2011. This is not because of my latest seizure but a case of misinformation. I was originally told I could drive six months after the operation, which would've been sometime in September. Now I'm told it's 12 months after treatment ends, which would be June/July next year. This does cause a few practical problems.
Now if you put the two in perspective one clearly outweighs the other, but it does clearly demonstrate a continuing theme. While the treatment may be first class, the administering of it isn't. I've already spoken about the unnecessary MIR scans, the wrong dosage of drugs and now this. Yesterday I was angry. Today I've got some perspective. So if you see me thumbing for a lift please stop. I may be bald with a big scar down my head, but I'm not a serial killer. Honest.
I shall stand down from my soap box now, thank the doctors who saved my life, and stop whinging about when they get a bit a paperwork wrong.
J
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